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Developing a Legal Framework for Population-Based Cancer Registries: A Toolkit

IARC Technical Publication No. 49

Sondra Davoren, Donald Maxwell Parkin, Biying Liu, Ma-Anne Rosales Sto. Domingo, Rachel Kitonyo-Devotsu, Hayley Jones, and Freddie Bray

2025

ISBN-13

978-92-832-4542-1

Other languages

No other languages


This toolkit, developed by the McCabe Centre for Law and Cancer (Australia), with the support of the International Agency for Research on Cancer (IARC) and the African Cancer Registry Network (AFCRN), is intended to serve as a resource to support countries to establish a legal basis for the mandatory reporting of cancer diagnoses to a population-based cancer registry. The toolkit comprises a report and several online tools to enable a structured approach to drafting a law. It ensures compliance with international best practice while allowing flexibility for local adaptation.